Latest Activity

tj bennett posted a status
Jun 18
tj bennett posted a status
"Tune in Fri VICE HBO11PM visit als.vice.com…"
Jun 17
tj bennett posted a status
"Register here for the Rally in Washington on June 16!https://www.facebook.com/gm604forals/posts/1778517679036239"
May 25
tj bennett posted a status
"WATCHCameron's Progress FightingSMA…"
May 22
tj bennett posted a status
"I need your help. Please read this entire post, donate and share it.https://www.facebook.com/gm604forals/posts/1776900749197932:0"
May 22
tj bennett posted a status
"GSNPC-1 or Gwendolyn Strong Neuron Progenitor Cells.http://thegsf.org/blog/detail/acts_of_kindness_research_named_for_gwendolyn/?"
May 21
tj bennett posted a status
"My little lost boy please share! His only chance is FDA approval of SMA rx It works https://twitter.com/ArtSlott/status/733716818993512449"
May 21
tj bennett posted a status
"Cut the red tape! Ionis and Biogen we want Nusinersen now. https://www.facebook.com/theFASTmovement/?fref=photo"
May 19
tj bennett posted a status
"Gene TherapyHelpsPatientshttp://www.bloomberg.com/news/articles/2016-05-19/spark-s-gene-therapy-boosts-clotting-in-3-hemophilia-patients?"
May 19
tj bennett posted a status
"What is the REGROW Act? Educate yourself here.https://www.facebook.com/gm604forals/posts/1776141489273858"
May 19
tj bennett posted a status
"nationwidekids…"
May 17
tj bennett posted a status
"clip on $IONS philosophy: The SMA drug clearly making Crooke very happy.https://twitter.com/RNAiAnalyst/status/731925567461818368"
May 15
tj bennett posted a status
"Swoboda's a joke."
May 14
tj bennett posted a status
"I'm not sure all of the members qualify as advocates for faster access."
May 14
tj bennett posted a status
"SMA Clinical Trials Panel at April 2016 FightSMA Conference https://youtu.be/1YWfnDDYHE8"
May 14
tj bennett posted a status
"Right to Try Event Highlights from yesterday's Senate hearing https://www.facebook.com/gm604forals/posts/1773515762869764"
May 12
tj bennett posted a status
"Local mom takes on #FDA for life-changing drug https://twitter.com/ArtSlott/status/730577779650072580"
May 12
tj bennett posted a status
"A Legal Test for FDA law dictates approval for a muscular dystrophy drug. http://www.wsj.com/articles/a-legal-test-for-the-fda-1462836044"
May 10
tj bennett posted a status
"HUGE ANNOUNCEMENT! Advocacy makes a difference! https://www.facebook.com/theFASTmovement/?fref=nf"
May 9
tj bennett posted a status
"The FDA Is Obtuse About Rare-Illness Drughttp://www.wsj.com/articles/the-fda-is-obtuse-about-rare-illness-drug-1462570538"
May 8

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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