SMAspace

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New Year / New Look

Created by Nate Lee Jan 1, 2012 at 1:36am. Last updated by Nate Lee Jan 4.

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Latest Activity

Remote-controlled power wheelchair doll

Hi there,I made a video about an idea for a remote-controlled wheelchair doll. http://youtu.be/lDnNbybpguoI'd love your thoughts about how to pitch this concept to a toy manufacturer.Thanks!CherylSee More

Blog post by Cheryl (Wren's Mom) 8 hours ago

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Lisa Oltmans replied to Scott Travers's discussion 'General Therapy Question' in the group Physical Therapy

Found this Sec. 300.34(c)(9) Physical therapy means services provided by a qualified physical therapist. If a teacher who is not a licensed physical therapist provides physical therapy they are violating this section of the IDEA law.

8 hours ago

Andrea Hill-Ruthenberg is now a member of SMAspace 8 hours ago

Welcome Them!

Lisa Oltmans replied to Scott Travers's discussion 'General Therapy Question' in the group Physical Therapy

Sorry that link wasn't good try http://idea.ed.gov/ Lisa

8 hours ago

Lisa Oltmans replied to Scott Travers's discussion 'General Therapy Question' in the group Physical Therapy

Hi Scott, In Oklahoma on homebound, we got 5 hours of classroom time (one per day), 2 PT, 2 OT, and 1 Speech session per week. The therapies were done by state licensed therapists; however, their therapy had to relate to school…

8 hours ago

General Therapy Question

I didn't see any posts or replies that specifically addressed our current situation. So, I'd like to put the topic out there and see what suggestions come back.Haydon is turning 3 in 10 days. Since her diagnosis at 7 months she has received PT, OT, Speech, and ECE through a state funded early intervention program. The program only offers services until she is 3 because, the state school districts offer a few schools in the state that will cover her going forward. We are electing for Home…See More

Scott Travers added a discussion to the group Physical Therapy 14 hours ago

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marissa montague replied to marissa montague's discussion 'newly diagnoses, what have been the most effective treatments?' in the group Newly Diagnosed

Interested in talking with dr scroth, anyone have contact info for her? Thank you

14 hours ago

Physical Therapy

This group is designed so parents and caregivers can share the physical therapy techniques, ideas, and resources that they use.

Scott Travers joined Meri Phelps's group 15 hours ago

16 Comments 5 Likes

Diana Lee replied to Diana Lee's discussion 'OFFER: Nellcor Infant SpO2 Sensor 3-20kg' in the group Supplies Drawer

Hi Susie, Yup, they are still available. Email me your address and I will send them out by the end of the week!: ) Diana

yesterday

Susie Roman's Mom replied to Diana Lee's discussion 'OFFER: Nellcor Infant SpO2 Sensor 3-20kg' in the group Supplies Drawer

If they are still available, we could use them! Thanks, Susie

yesterday

OFFER: Nellcor Infant SpO2 Sensor 3-20kg

5 pulse ox probes. Please pay for shipping. Thanks!See More

Diana Lee added a discussion to the group Supplies Drawer yesterday

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Photo posted by Crystal Marie Garcia yesterday

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Marcela (Amanda's Mom) replied to Traci High's discussion 'What is your favorite nebulizer machine?'

We use a Pari one, it's small and not too noisy http://www.pari.com/products/nebulizers.html

yesterday

Patricia Rudd liked Michael C. Casten's video

"Cure SMA"...Mama Bracelets

yesterday

Patricia Rudd replied to Steve (Jack's Dad)'s discussion 'Anat Baniel Method' in the group SMA Type II

Cosmo did it when he was 2 ish. It got him aware of his lower body and encouraged him to use it. We continued for about a year or so. I would give it a try if I were you... Patricia

yesterday

Patricia Rudd replied to sheonad macfarlane's discussion 'Potty training' in the group SMA Type II

Hi Sheonade, I think it really depends on your child and their physical strength. I used regular training pants and looked for a potty seat that was comfortable. I tried one that had a foot rest and hand holds thinking it would add security…

yesterday

jennifer lozina commented on Sheree Norton's group 'Pain Meds'

You do not want to have her on morphine or Anything else in drip form, it suppresses her ability to breath on her own. She can have versed and fentanyl prn.

yesterday

Pain Meds

Savannah coded and turned blue two days ago. She was life flighted. We thought we lost her. She is now intubated and confirmed flu and pneumonia her left and partial right lung collapsed. How much is too much pain meds for sma?See More

jennifer lozina joined Sheree Norton's group yesterday

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What is your favorite nebulizer machine?

We are in the market or a new nebulizer machine. We have the standard loud one that we got at initial diagnosis four years ago. I did have an aero neb for a while, but it cracked (twice). I talked to the pulmonary doc about it yesterday and she said that you really want one powered by oxygen vs. the aero neb we had, especially for the pulmozyme which needs the O2 for full effect. I am really hoping to find something that works a little faster than our current. Is there some technology I am…See More

Discussion posted by Traci High yesterday

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Barbara Zahn left a comment for Natalia ( Zoya's mother)

I saw your question about how the liquid albuterol affects the muscles - truthfully, I don't know, it's just something Lucy's doctor recommended we try, and lots of families have had success with it, so we wanted to try it too :)

Monday