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Matt Hiley liked Nate Lee's discussion Mobile and Backup Power Options for Cough Assist
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Clarissa replied to Lorraine Howard's discussion My Book out this week!
"I loved what I was able to read online at Amazon.  I wish I could get it on my Nook.  But I am going to buy the hardcover one. So that Maliylah can have it to read when Im done. She loves to read.  And reading about someone with a…"
Jan 14
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Clarissa posted a status
"Wow Hi all... I have not been on here in a while. What brought me back here today was the passing of Brianna McDanel. I met her here."
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Jan 9
Nate Lee replied to Katrina's discussion downloadining/saving a video
"Can you try right-clicking on the video and see if it gives you the option to save or download?  You can also choose the "Options" drop-down towards the top of the window to see if it gives you an option to save or download. Let me…"
Jan 9
Genyfer Morales left a comment for Samantha Baldwin
"Hi Samantha! I wanted to add you on facebook, I just saw your comment, I haven't been on here in forever. If you want to talk add me. My name on facebook is Genyfer Moon-morales"
Jan 9
Katrina posted a discussion

downloadining/saving a video

Does anyone know how to download a video off of this site? This is the only copy I have and I no longer have the original. I don't want to lose it forever if/when this site goes down. Thanks!See More
Jan 9
Francesca liked Megan (Jordan's mommy)'s photo
Jan 9
Lorraine Howard posted a status
"My Book 'It's one of them!' - living with SMA.... is now available on Amazon, a brilliant inspiring read!"
Dec 27, 2014
Lorraine Howard replied to Lorraine Howard's discussion My Book out this week!
"thank you..........very proud of myself! xx"
Dec 27, 2014
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Dec 21, 2014
Lorraine Howard commented on Lorraine Howard's photo
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"My finished Book.............. press release 19th December 2014!"
Dec 16, 2014
Lorraine Howard posted photos
Dec 16, 2014
Profile IconElisabeth Patch and shen dani joined SMAspace
Dec 15, 2014
Lorraine Howard posted a discussion

My Book out this week!

Hi everyoneI mentioned a few years ago that I had started writing a book. I am a SMA type 2\3 sufferer and have now completed my book about my life!'It's one of them!' - Living with Spinal Muscular AtrophyIs out now! I will have copies to sell this week and my book will be available to buy on Amazon and other stores in January. It will also be available as an E-book.I've worked really hard and it's a great read!ThanksLorraineSee More
Dec 15, 2014
Zainab Jaffar liked Linda Zuroff's profile
Dec 15, 2014

Forum

My Book out this week!

Started by Lorraine Howard in Other. Last reply by Clarissa Jan 14. 3 Replies

downloadining/saving a video

Started by Katrina in Other. Last reply by Katrina Jan 9. 2 Replies

Autonomic Nervous Symptoms in SMA Questionnaire

Started by MJ & Brenda of B4SMA in Research. Last reply by Heather Bedenbaugh Nov 13, 2014. 7 Replies

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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