Latest Activity

tj bennett posted a status
"UCLA professors launch campaign for son’s muscular dystrophy http://tinyurl.com/me4m97x"
19 hours ago
tj bennett posted a status
"SMA mom: Everyone knows it ( $ISIS) works https://twitter.com/ArtSlott/status/600702148154757121"
Tuesday
mummyoffinny is now a member of SMAspace
Sunday
tj bennett posted a status
Saturday
tj bennett posted a status
"Sarepta.for DMD..watch video. http://tinyurl.com/krk4zwl"
May 14
Kristina is now a member of SMAspace
May 11
tj bennett posted a status
May 2
tj bennett posted a status
"Stanford stem cell experts highlight “inherent flaw” in drug development systemhttp://tinyurl.com/q3wor4q"
May 2
Pate Family is now a member of SMAspace
Apr 26
Emma Wilby left a comment for Rob
"Hi have you got bvvl yourself?"
Apr 24
Rob liked Rob's discussion Join the international BVVL community
Apr 24
Rob added a discussion to the group BVVL/Fazio-Londe
Apr 24
tj bennett posted a status
"Rally for Faster Drug Approval http://www.meetup.com/ALS-Faster-Drug-Approval/"
Apr 22
tj bennett posted a status
"Nascent ALS Drug and an FDA Review http://tinyurl.com/jvkm567"
Apr 21
Elizabeth Terhorst left a comment for Tricia Garrison
"Hi Tricia, I'm so sorry to hear about Cooper's diagnosis!  If you would like, I'm happy to add you to different private facebook groups to help offer support (facebook groups are more active than smaspace).  We took a…"
Apr 20
Tricia Garrison is now a member of SMAspace
Apr 20
Ruby Lopez is now a member of SMAspace
Apr 14
tj bennett posted a status
"GM604 in a Nutshell April 13, 2015 http://tinyurl.com/lh3eh6w"
Apr 14
leyla posted a status
"What is vegetative state children sma"
Apr 11
tj bennett posted a status
"Mark Veilleux: FDA needs to move quickly to save young lives http://tinyurl.com/klbfvko"
Apr 5

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

Members

Birthdays

Photos

Loading…
  • Add Photos
  • View All

Videos

  • Add Videos
  • View All

Badge

Loading…

Where are we?

Locations of visitors to this page

© 2015   Created by Nate Lee.

Badges  |  Report an Issue  |  Terms of Service