Latest Activity

Brad (Shira SMA Type 1 Age 7) posted a video

Katy Parry " Firework" Shira's Birthday Party June 16, 2013

A huge rockin birthday bash in our back yard. Happy birthday Shira we love you with all our hearts. We are so thankful you are still with us!
yesterday
Lisa Oltmans left a comment for Justin Tuttle
"Welcome to SMA space Dr. Tuttle.  My son used a local Chiropractor named Dr Ed Cleere who used electro-muscle stim on my son to eliminate back pain.  Dr. Cleere also worked with an orthotist to create a plastic turtle shell back…"
Sunday
Elizabeth Terhorst replied to Jessica Schaefer's discussion Getting Pregnant Again
"Hi Jessica.  I'm so sorry to hear of Madison's passing.  My first child, Sophie, passed away at 9 months of age.  We decided to try naturally (though we considered IVF) and had a CVS at 10 weeks in-utero.  We knew ahead…"
Saturday
matt herman liked matt herman's profile
Friday
matt herman liked matt herman's profile
Friday
Lisa Oltmans liked Brad (Shira SMA Type 1 Age 7)'s photo
Thursday
Traci High replied to Traci High's discussion Bowel movements
"It doesn't sound harsh at all! That sounds about like what we are doing. He has gotten much better recently and finally it was because we basically told him no one wants to be friends with a stinky kid. Now he announces it and we are like,…"
Jun 8
Janet Morgan replied to Traci High's discussion Bowel movements
"Hi Traci - My son is Type 1 and 7 years old. It has been a battle for us to get him to tell us when he has had a bowel movement. We would find out because we could smell it, but have always encouraged him to tell us (we don't want him to get…"
Jun 5
Profile IconLieselotte De Roeck and Erwin Po joined SMAspace
Jun 3
Brad (Shira SMA Type 1 Age 7) posted photos
Jun 2
Amber Stinson liked Jennifer L Perkins's discussion Diploma Track
Jun 2
MJ & Brenda of B4SMA posted a status
"Still have time to include you/your child in Faces of SMA Video. Send us a picture now!"
Jun 1
Profile IconJustin Tuttle and Laura jolliffe joined SMAspace
Jun 1
Misty dobson liked Frederick & Rebekah's photo
May 30
Misty dobson liked Frederick & Rebekah's photo
May 30
Misty dobson liked Frederick & Rebekah's photo
May 30
Karima Hinoun liked Karima Hinoun's profile
May 29
Frederick & Rebekah replied to Frederick & Rebekah's discussion Learning to use My tobii eye graze system
"Hi Lisa, You amaze me that you able to"
May 29
Lisa Oltmans left a comment for Tamera Bradley
"Tamera, the link for the Carolina group is http://www.smaspace.com/group/ncfamilies?commentId=2361480%3AComment%3A32255  I had to do a search in the upper right corner to find it.  Please join the group and post your questions. …"
May 29
Lisa Oltmans left a comment for Veronica Serbanoiu
"Welcome to SMA Space! "
May 29

Forum

Getting Pregnant Again

Started by Jessica Schaefer in Parenting. Last reply by Elizabeth Terhorst on Saturday. 5 Replies

Bowel movements

Started by Traci High in Other. Last reply by Traci High Jun 8. 2 Replies

Learning to use My tobii eye graze system

Started by Frederick & Rebekah in Education. Last reply by Frederick & Rebekah May 29. 2 Replies

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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