Latest Activity

tj bennett posted a status
"Promising New Drugfrom LorsonLab Could Help TreatSMA.…"
Monday
Lisa Oltmans left a comment for Zia Joia
"Welcome Zia."
Jul 21
Lisa Oltmans left a comment for Lien
"Hello Lien. "
Jul 21
Lisa Oltmans left a comment for Bhavin Bijlani
"So sorry for your loss. "
Jul 21
Lisa Oltmans left a comment for erin bonner
"Welcome Erin. "
Jul 21
Lisa Oltmans left a comment for Chaia Miller
"Welcome Chaia. "
Jul 21
tj bennett posted a status
"AVXS Receives Breakthrough Therapy Designation for AVXS-101…"
Jul 21
Profile IconLien, Chaia Miller, Zia Joia and 2 more joined SMAspace
Jul 15
tj bennett posted a status
"Boys, Not Statistics A drug for muscular dystrophy works better than we reportedhttp://www.wsj.com/articles/boys-not-statistics-1467934040"
Jul 9
Jennifer is now a member of SMAspace
Jul 7
tj bennett posted a status
"Where’s the Drug, FDA?The agency keeps delaying a therapy for muscular dystrophy. http://www.wsj.com/articles/wheres-the-drug-fda-1467413266"
Jul 5
tj bennett posted a status
Jun 18
tj bennett posted a status
"Tune in Fri VICE HBO11PM visit als.vice.com…"
Jun 17
tj bennett posted a status
"Register here for the Rally in Washington on June 16!https://www.facebook.com/gm604forals/posts/1778517679036239"
May 25
tj bennett posted a status
"WATCHCameron's Progress FightingSMA…"
May 22
tj bennett posted a status
"I need your help. Please read this entire post, donate and share it.https://www.facebook.com/gm604forals/posts/1776900749197932:0"
May 22
tj bennett posted a status
"GSNPC-1 or Gwendolyn Strong Neuron Progenitor Cells.http://thegsf.org/blog/detail/acts_of_kindness_research_named_for_gwendolyn/?"
May 21
tj bennett posted a status
"My little lost boy please share! His only chance is FDA approval of SMA rx It works https://twitter.com/ArtSlott/status/733716818993512449"
May 21
tj bennett posted a status
"Cut the red tape! Ionis and Biogen we want Nusinersen now. https://www.facebook.com/theFASTmovement/?fref=photo"
May 19
tj bennett posted a status
"Gene TherapyHelpsPatientshttp://www.bloomberg.com/news/articles/2016-05-19/spark-s-gene-therapy-boosts-clotting-in-3-hemophilia-patients?"
May 19

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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