Latest Activity

Ashley posted a photo

abby

This is my daughter abby she has sma we are new to the site
16 hours ago
Lissa M is now a member of SMAspace
Friday
Helen Rutherford posted a discussion

Professional SMA counselling service in the UK

My name is Helen Rutherford and I am a counsellor based in the North East UK. I have a physical disability (SMA type II) and am an electric wheelchair user. I am currently doing some market research into setting up a unique counselling service as I have several years professional experience and a lifetime of personal experience of living with a physical disability. I believe this gives me insight into everyday issues, emotional difficulties, relationship dynamics and I can use this…See More
Wednesday
Profile IconAshley and Helen Rutherford joined SMAspace
Aug 27
Rashad Bakker posted photos
Aug 27
Cynthia Cummings posted photos
Aug 26
Cynthia Cummings posted a discussion

SMA and CBD

Hi I am new to the group. My daughter has SMA type 1. I have been doing A LOT of research on forms of medical cannabis as it pertains to treatment of neurodegenerative damage however I can't really find anything about CBD and it's possible effects on patients with SMA. does anyone out there know of any studies done on this? Info of any kind would help! I looking for Studies published in medical journals, private studies...etc, or your own personal experience even. Thanks
Aug 21
Profile IconCynthia Cummings and Ali J joined SMAspace
Aug 21
Shelley Byrd replied to shahar(Lior's dad,2.5 yr Girl)'s discussion VoiceIt - translating non comprehensible speech
"So exciting! "
Aug 14
Noelle is now a member of SMAspace
Aug 13
Kirsten Cloutier Grabo is now a member of SMAspace
Aug 11
shahar(Lior's dad,2.5 yr Girl) replied to shahar(Lior's dad,2.5 yr Girl)'s discussion VoiceIt - translating non comprehensible speech
"Hi all,  the Voiceitt indigogo campaign launched. I really think this can make an impact on the quality of life for SMA and also for other family members and friends. Please join the effort and forward this to who might be…"
Aug 10
Lisa Oltmans replied to wen's discussion Wheelchair head mount for type 1, 5 yr old
"You don't have to use the forehead strap but get it in case you ever need it.  Our Dad = wild driver!!! "
Aug 9
Lauren perlman is now a member of SMAspace
Aug 9
wen replied to wen's discussion Wheelchair head mount for type 1, 5 yr old
"Thanks Lisa."
Aug 9
wen liked shahar(Lior's dad,2.5 yr Girl)'s discussion VoiceIt - translating non comprehensible speech
Aug 9
Julio Carretero is now a member of SMAspace
Aug 6
Suzanne replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"Who pays for experimental drug when using Right to Try laws?"
Aug 5
tj bennett replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"interesting read.... When unapproved drugs are the only hope A movement has begun in several states to address the issue of access to experimental medicines. Called Right to Try, laws have been passed in Colorado, Missouri and Louisiana, and are…"
Aug 5
Rashad Bakker left a comment for Kristen Dougan
"Thanks!"
Aug 2

Forum

Professional SMA counselling service in the UK

Started by Helen Rutherford in Therapy on Wednesday. 0 Replies

SMA and CBD

Started by Cynthia Cummings in Other Aug 21. 0 Replies

VoiceIt - translating non comprehensible speech

Started by shahar(Lior's dad,2.5 yr Girl) in Technology. Last reply by Shelley Byrd Aug 14. 4 Replies

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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