Latest Activity

tj bennett posted a status
"EVERYONE deserves this chance. We were completely blessed to get into the SMNrx trial.we are beyond thankful. http://tinyurl.com/qewlaus"
11 hours ago
Lisa Oltmans left a comment for Louis Ke
"Welcome to SMA Space, Louis. "
Jun 23
Lisa Oltmans left a comment for Jelani
"Welcome Jelani to SMA Space. "
Jun 23
Jelani is now a member of SMAspace
Jun 17
tj bennett posted a status
"Pioneering gene therapy may save babies’ lives http://tinyurl.com/p7h4gts"
Jun 17
Louis Ke is now a member of SMAspace
Jun 13
tj bennett posted a status
"Infants with rare cases of SMA get strongerhttp://tinyurl.com/o6w5bgw"
Jun 11
Lisa Oltmans posted a photo
Jun 5
tj bennett posted a status
"ask the FDA to "Be reasonable" and use accelerated approval for a whole class of new medicines http://tinyurl.com/l6w42yc"
May 23
Profile IconLisa Oltmans and Angileigh Hartman joined SMAspace
May 22
tj bennett posted a status
"UCLA professors launch campaign for son’s muscular dystrophy http://tinyurl.com/me4m97x"
May 21
tj bennett posted a status
"SMA mom: Everyone knows it ( $ISIS) works https://twitter.com/ArtSlott/status/600702148154757121"
May 19
mummyoffinny is now a member of SMAspace
May 16
tj bennett posted a status
May 16
tj bennett posted a status
"Sarepta.for DMD..watch video. http://tinyurl.com/krk4zwl"
May 14
Kristina is now a member of SMAspace
May 11
tj bennett posted a status
May 2
tj bennett posted a status
"Stanford stem cell experts highlight “inherent flaw” in drug development systemhttp://tinyurl.com/q3wor4q"
May 2
Pate Family is now a member of SMAspace
Apr 26
Emma Wilby left a comment for Rob
"Hi have you got bvvl yourself?"
Apr 24

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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