I'm so sorry to hear about Cooper's diagnosis! If you would like, I'm happy to add you to different private facebook groups to help offer support (facebook groups are more active than smaspace). We took a…"
I know that SMAspace is shutting down. I used to remember that I watched a video called "daily respiratory care a sma family" that tells how to use all the respiratory care medical equipment in a SMA family. I can't find it on the Internet. Any idea where I can watch the video again?See More
The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA. Please visit this link to see the latest list of resources available to the SMA community.