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"My finished Book.............. press release 19th December 2014!"
Tuesday
Lorraine Howard posted photos
Tuesday
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Monday
Lorraine Howard posted a discussion

My Book out this week!

Hi everyoneI mentioned a few years ago that I had started writing a book. I am a SMA type 2\3 sufferer and have now completed my book about my life!'It's one of them!' - Living with Spinal Muscular AtrophyIs out now! I will have copies to sell this week and my book will be available to buy on Amazon and other stores in January. It will also be available as an E-book.I've worked really hard and it's a great read!ThanksLorraineSee More
Monday
Zainab Jaffar liked Linda Zuroff's profile
Monday
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Dec 10
tj bennett posted a status
"AveXis Announces Launch of New Patient-Oriented Website Focused on Spinal Muscular Atrophy http://www.pr.com/press-release/595291"
Dec 4
Santosh Reddy is now a member of SMAspace
Nov 29
Aylam Bar Shalom is now a member of SMAspace
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Nov 17
Annie Ford liked Lisa Oltmans's blog post An OCD Mom’s Caregiver Guideline for Hospital Stays
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Nov 15
Heather Bedenbaugh replied to MJ & Brenda of B4SMA's discussion Autonomic Nervous Symptoms in SMA Questionnaire
"Hi I have a daughter with SMA 3 and since she has received the flu shots with the H1N1 strain she has experienced horrible autonomic nervous dysfunction symptoms. Currently our biggest concern is her circulation. Her feet turn purple much more…"
Nov 13
tj bennett posted a status
"The Race to Yes Have you emailed Commissioner Hamburg yet? http://tinyurl.com/ounl7wh everyone should help them..."
Nov 10
tj bennett replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"Arms for Asher - Fighting SMA Together Today was a powerful day. An unexpected powerful day. It was Asher's 5th injection for a trial drug that is proving to benefit SMA babies. This drug is not a cure, but it is an effective treatment. It is…"
Nov 1
beth gatto is now a member of SMAspace
Oct 24
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Oct 23
Lilah posted photos
Oct 20

Forum

My Book out this week!

Started by Lorraine Howard in Other on Monday. 0 Replies

Autonomic Nervous Symptoms in SMA Questionnaire

Started by MJ & Brenda of B4SMA in Research. Last reply by Heather Bedenbaugh Nov 13. 7 Replies

HOW CLOSE ARE WE TO A TREATMENT OR CURE???/

Started by Jen (Boro) Peters in Other. Last reply by tj bennett Nov 1. 98 Replies

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The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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