Latest Activity

Courtney commented on Zoe Mckechnie 's status
"No, I didn't know about any of the facebook groups. Could you maybe send me an invite to one of them? This is my facebook profile: https://www.facebook.com/courtney.frazer.3"
yesterday
Zoe Mckechnie commented on Zoe Mckechnie 's status
"My youngest son has SMA type 2. I am not sure if i will use this as it seems its not used that often. I use alot of the FB groups which are really goo. Are you on them?"
Tuesday
Nichole Frost is now a member of SMAspace
Feb 20
Courtney commented on Zoe Mckechnie 's status
"I think youre right about that. I came across this site when I was searching for support for SMA. I have SMA type 3. How are you connected with SMA?"
Feb 19
Zoe Mckechnie liked Zoe Mckechnie 's status
Feb 19
tj bennett posted a status
Feb 18
tj bennett posted a status
Feb 16
Zoe Mckechnie posted a status
"New to this so I am not sure how it works!"
Feb 16
tj bennett posted a status
Feb 15
tj bennett posted a status
"GM604 Campaign Website: https://sites.google.com/site/aap4gm6/ GM604 Facebook page:…"
Feb 15
tj bennett posted a status
Feb 15
tj bennett posted a status
"For A.L.S. Patients, a Hopeful Drug That Is Out of Reach http://tinyurl.com/pgx5rev"
Feb 13
Rick Hall left a comment for Kjersten Post
"Hi Kiersten, I recommend Dr. Richard Finkel Division Chief of Pediatric Neurology at Nemours Childrens Hospital in Orlando, Fl.  He is conducting a clinical trial of a drug to treat SMA, my daughter is in the trial and we have been pleased…"
Feb 13
Courtney replied to Brynne Willis's discussion College Transition in the group SMA Type III
"Im 24 and I just got diagnosed last year. I have been having a hard time telling people because everyone assumes Im normal and when I was getting diagnosed last year one of the people I thought was one of my closest friends told me there was too…"
Feb 12
Teri Taylor left a comment for Kjersten Post
"There are several families in Florida. You will find them on facebook. You can contact me at 530-260-3750. We are a very close community."
Feb 12
Teri Taylor left a comment for Kjersten Post
"Hi Kjersten, you have found the right place! My grandson, Charleston, is 5 YEARS old, Type 1. This site does have help, but you really need to go on Facebook & join some of the groups there. Do a search for SMA & there will be a bunch. Best…"
Feb 12
Courtney replied to Susan Haas Bowes's discussion Weight Loss in the group SMA Type III
"Hi. Im Courtney. I have SMA III. I go swimming a lot and it is very helpful."
Feb 12
Courtney liked Susan Haas Bowes's discussion Weight Loss
Feb 12
Profile IconTara Silva, Cashel Gardner, Zoe Mckechnie and 9 more joined SMAspace
Feb 12
Karen Reilly shared their photo on Facebook
Feb 11

Forum

My Book out this week!

Started by Lorraine Howard in Other. Last reply by Clarissa Jan 14. 3 Replies

downloadining/saving a video

Started by Katrina in Other. Last reply by Katrina Jan 9. 2 Replies

Autonomic Nervous Symptoms in SMA Questionnaire

Started by MJ & Brenda of B4SMA in Research. Last reply by Heather Bedenbaugh Nov 13, 2014. 7 Replies

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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