"Welcome to SMA space Dr. Tuttle. My son used a local Chiropractor named Dr Ed Cleere who used electro-muscle stim on my son to eliminate back pain. Dr. Cleere also worked with an orthotist to create a plastic turtle shell back…"
"Hi Jessica. I'm so sorry to hear of Madison's passing. My first child, Sophie, passed away at 9 months of age. We decided to try naturally (though we considered IVF) and had a CVS at 10 weeks in-utero. We knew ahead…"
"It doesn't sound harsh at all! That sounds about like what we are doing. He has gotten much better recently and finally it was because we basically told him no one wants to be friends with a stinky kid. Now he announces it and we are like,…"
"Hi Traci -
My son is Type 1 and 7 years old. It has been a battle for us to get him to tell us when he has had a bowel movement. We would find out because we could smell it, but have always encouraged him to tell us (we don't want him to get…"
The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA. Please visit this link to see the latest list of resources available to the SMA community.