Latest Activity

Emma Wilby left a comment for Rob
"Hi have you got bvvl yourself?"
yesterday
Rob liked Rob's discussion Join the international BVVL community
Friday
Rob added a discussion to the group BVVL/Fazio-Londe
Friday
tj bennett posted a status
"Rally for Faster Drug Approval http://www.meetup.com/ALS-Faster-Drug-Approval/"
Wednesday
tj bennett posted a status
"Nascent ALS Drug and an FDA Review http://tinyurl.com/jvkm567"
Tuesday
Elizabeth Terhorst left a comment for Tricia Garrison
"Hi Tricia, I'm so sorry to hear about Cooper's diagnosis!  If you would like, I'm happy to add you to different private facebook groups to help offer support (facebook groups are more active than smaspace).  We took a…"
Monday
Tricia Garrison is now a member of SMAspace
Monday
Ruby Lopez is now a member of SMAspace
Apr 14
tj bennett posted a status
"GM604 in a Nutshell April 13, 2015 http://tinyurl.com/lh3eh6w"
Apr 14
leyla posted a status
"What is vegetative state children sma"
Apr 11
tj bennett posted a status
"Mark Veilleux: FDA needs to move quickly to save young lives http://tinyurl.com/klbfvko"
Apr 5
tj bennett posted a status
"FDA panelist confirms conflict of interest following Sarepta drug discussions http://tinyurl.com/q49s6ol"
Mar 31
Shae Sayles (Shannan) is now a member of SMAspace
Mar 30
Llen liked Nate Lee's discussion Mobile and Backup Power Options for Cough Assist
Mar 21
Llen liked Betty's discussion Where to find the good video named "daily respiratory care a sma family" that used to be distributed on www.smaspace.com
Mar 21
Profile IconRob and Llen joined SMAspace
Mar 21
Betty liked kate madera's video
Mar 21
Betty posted a discussion

Where to find the good video named "daily respiratory care a sma family" that used to be distributed on www.smaspace.com

I know that SMAspace is shutting down. I used to remember that I watched a video called "daily respiratory care a sma family" that tells how to use all the respiratory care medical equipment in a SMA family. I can't find it on the Internet. Any idea where I can watch the video again?See More
Mar 21
Betty replied to Lorraine Howard's discussion My Book out this week!
"I saw it on Amazon.com congrats!!!!"
Mar 21
Betty liked Lorraine Howard's discussion My Book out this week!
Mar 21

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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