"I loved what I was able to read online at Amazon. I wish I could get it on my Nook. But I am going to buy the hardcover one. So that Maliylah can have it to read when Im done. She loves to read. And reading about someone with a…"
"Can you try right-clicking on the video and see if it gives you the option to save or download? You can also choose the "Options" drop-down towards the top of the window to see if it gives you an option to save or download. Let me…"
Hi everyoneI mentioned a few years ago that I had started writing a book. I am a SMA type 2\3 sufferer and have now completed my book about my life!'It's one of them!' - Living with Spinal Muscular AtrophyIs out now! I will have copies to sell this week and my book will be available to buy on Amazon and other stores in January. It will also be available as an E-book.I've worked really hard and it's a great read!ThanksLorraineSee More
The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA. Please visit this link to see the latest list of resources available to the SMA community.