Hi everyoneI mentioned a few years ago that I had started writing a book. I am a SMA type 2\3 sufferer and have now completed my book about my life!'It's one of them!' - Living with Spinal Muscular AtrophyIs out now! I will have copies to sell this week and my book will be available to buy on Amazon and other stores in January. It will also be available as an E-book.I've worked really hard and it's a great read!ThanksLorraineSee More
"Hi I have a daughter with SMA 3 and since she has received the flu shots with the H1N1 strain she has experienced horrible autonomic nervous dysfunction symptoms. Currently our biggest concern is her circulation. Her feet turn purple much more…"
"Arms for Asher - Fighting SMA Together Today was a powerful day. An unexpected powerful day. It was Asher's 5th injection for a trial drug that is proving to benefit SMA babies. This drug is not a cure, but it is an effective treatment. It is…"
The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA. Please visit this link to see the latest list of resources available to the SMA community.