Latest Activity

tj bennett posted a status
"google title,read it,pass it on..has implications for all...or you can sit there, do nothing and wait for everyone to do the right thing."
Friday
tj bennett posted a status
"Mental Dystrophy at the FDA How they deny a drug for a deadly disease.http://www.wsj.com/articles/mental-dystrophy-at-the-fda-1461885588"
Friday
tj bennett posted a status
"BioPharm Executive: Biotech Is for the 1% http://www.biospace.com/news_print.aspx?NewsEntityId=416675"
Wednesday
tj bennett posted a status
"Dr. Jerry Mendell, says . "Usually boys this age with Duchenne muscular dystrophy don't walk," ."
Tuesday
tj bennett posted a status
"Does Muscular Dystrophy Drug work? Advocates Pack FDA Meeting - NBC News https://twitter.com/TerriEllsworth/status/724935246542680066"
Tuesday
tj bennett posted a status
"Despite patient advocacy panel voted agst Sareptadrug:…"
Tuesday
tj bennett posted a status
"Sarepta Kaye reacts to FDA panel's negative decision on approval of Duchenne md drug.http://video.cnbc.com/gallery/?video=3000512578"
Tuesday
tj bennett posted a status
"US_FDA's Woodcock seems to lay out a rationale forSRPT Duchenne drug to be granted temp appr http://tinyurl.com/hce2anf"
Apr 25
tj bennett posted a status
"Watch and support...it's all of us."
Apr 23
tj bennett posted a status
"A RAY OF HOPE for those dealing with DMD? Monday to be a very intense showdown.https://www.facebook.com/gm604forals/posts/1766385990249408"
Apr 23
tj bennett posted a status
"Most undr appr bio evnt past week:ions SMA infant OLE update: 2 type Is walking,https://twitter.com/RNAiAnalyst/status/723781406028124160"
Apr 23
tj bennett posted a status
"pristine safety profile....what are they waiting for????????????????"
Apr 22
tj bennett posted a status
"$IONS Positive Update On SMA And Broader Neurology Pipeline https://twitter.com/tgtxdough/status/723531696335781891"
Apr 22
tj bennett posted a status
"Great editorial in this morning's WSJ.https://www.facebook.com/gm604forals/posts/1766245000263507"
Apr 22
tj bennett posted a status
"Duchenne moms undeterred: 'These boys are not precedents'“tired of the canned responses to everything”http://tinyurl.com/jl86o69"
Apr 22
tj bennett posted a status
"Stunning trial results onSMA w/ AAV9 Brian Kaspar>1dose >able to sit/stand! https://twitter.com/BurkeLabRNA/status/722496925111431168"
Apr 22
tj bennett posted a status
"unreal"
Apr 21
tj bennett posted a status
"Forbes argues SRPT shldn't be given accel approval b/c expensive and might not work.https://twitter.com/BosBizDon/status/723101095359332352"
Apr 21
tj bennett posted a status
"nusinersen.no new events snce Dec14 in OLE of20 infants…"
Apr 20
tj bennett posted a status
"Nusinersen trial- I expect only great news this weekThe incr in strength = wow.https://twitter.com/damnedbridge/status/722150390880292864"
Apr 19

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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