Latest Activity

Rachel Peace left a comment for Lisa Oltmans
"Hello, thanks for welcoming and friends request!"
Monday
Breanne Hurd is now a member of SMAspace
Apr 17
Holly Gritter is now a member of SMAspace
Apr 15
Rachel Peace is now a member of SMAspace
Apr 14
Rick Hall commented on aamena's status
"I hope the procedure went well.  No my daughter weaned to just sleeping with bi-pap during the 11 days in the hospital.  When we got home we put it on her for a while, but gradually we quit doing it and haven't used it for the last…"
Apr 11
Rick Hall commented on aamena's status
"oh, she's nine months right now."
Apr 8
Rick Hall commented on aamena's status
"My daughter is a "typical" type I (not strong, not weak, typical).  We did the G-tube surgery and Nissen at 6 months.  She was fully anesthetized and surgery lasted several hours.  She was extubated to bi-PAP and spent 11…"
Apr 8
Rashad Bakker posted photos
Apr 5
wen posted a discussion

Shower trolley

If you own a shower trolley, please share your experience with use.  Our 4 yr old, type 1 is 30 lbs and we're thinking of ways to bath her safely without breaking our backs.  We're planning to use the shower trolley to transfer her from bed and roll into the shower to bath her in this.Thanks.See More
Apr 2
wen replied to wen's discussion Speech device: Dynavox Maestro or Tobii EyeMobile with Microsoft Surface tablet? in the group Speech and Communication
"Thanks Amber."
Apr 2
barbara zenonos is now a member of SMAspace
Mar 28
Amber Stinson replied to wen's discussion Speech device: Dynavox Maestro or Tobii EyeMobile with Microsoft Surface tablet? in the group Speech and Communication
"I'm a speech therapist and would suggest you try each of them at least 1 time before you decide. Prentke Romich also makes the Accent 1200 with NuEye that is a great device and can be paid for my Medicaid and/or insurance"
Mar 28
wen replied to wen's discussion Speech device: Dynavox Maestro or Tobii EyeMobile with Microsoft Surface tablet? in the group Speech and Communication
"Thanks Lisa."
Mar 26
Lindsay posted photos
Mar 26
Lisa Oltmans replied to wen's discussion Speech device: Dynavox Maestro or Tobii EyeMobile with Microsoft Surface tablet? in the group Speech and Communication
"I think I'd lean toward the Tobii, because it would work great for school, too.  The ideal thing would be to have a speech pathologist get one for her to try out first to make sure it would work for her.  If you can contact the…"
Mar 25
wen added a discussion to the group Speech and Communication
Thumbnail

Speech device: Dynavox Maestro or Tobii EyeMobile with Microsoft Surface tablet?

We're looking into getting Amanda a speech device and she'll be 5 years old in a few months and a type 1.  Has anyone trialed or done a comparison between Dynavox Maestro and Tobii EyeMobile with Microsoft Surface tablet?  Please share your experience and research.  I'm leaning towards the Tobii EyeMobile with tablet because it's compact, portable, and a computer so use won't be limited to AAC apps but other productivity and commonly used software like MS Word, Excel and such.Here are some…See More
Mar 25
Angela B Goolsby liked Lisa Oltmans's blog post Hope is a Must and You Have to Live Fearlessly
Mar 24
Brandy D Shifflett (Emma's Mom) left a comment for Angela B Goolsby
"Welcome and sorry to hear about your grandson's diagnosis. I have a daughter that will be 10 in May. She has type 2. We live near Greenville, NC."
Mar 23
Angela B Goolsby is now a member of SMAspace
Mar 23
Debby St. Onge commented on aamena's status
"The majority of true type 1s have had G-tube surgery. It is scary, it was several years ago now, but I still remember how scared I was. The only reason you need full anesthesia is if you are also having a nissen procedure done. It is recommended, as…"
Mar 23

Forum

Shower trolley

Started by wen in Equipment Apr 2. 0 Replies

new diagnosed

Started by LaCrecia Reed in Other. Last reply by LaCrecia Reed Mar 21. 7 Replies

New member

Started by Megan Bellavance in Other. Last reply by Lisa Oltmans Mar 19. 3 Replies

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

Members

Photos

Loading…
  • Add Photos
  • View All

Videos

  • Add Videos
  • View All

Badge

Loading…

Where are we?

Locations of visitors to this page

© 2014   Created by Nate Lee.

Badges  |  Report an Issue  |  Terms of Service