Latest Activity

Cynthia Cummings posted a discussion

SMA and CBD

Hi I am new to the group. My daughter has SMA type 1. I have been doing A LOT of research on forms of medical cannabis as it pertains to treatment of neurodegenerative damage however I can't really find anything about CBD and it's possible effects on patients with SMA. does anyone out there know of any studies done on this? Info of any kind would help! I looking for Studies published in medical journals, private studies...etc, or your own personal experience even. Thanks
yesterday
Profile IconCynthia Cummings and Ali J joined SMAspace
yesterday
Shelley Byrd replied to shahar(Lior's dad,2.5 yr Girl)'s discussion VoiceIt - translating non comprehensible speech
"So exciting! "
Aug 14
Noelle is now a member of SMAspace
Aug 13
Kirsten Cloutier Grabo is now a member of SMAspace
Aug 11
shahar(Lior's dad,2.5 yr Girl) replied to shahar(Lior's dad,2.5 yr Girl)'s discussion VoiceIt - translating non comprehensible speech
"Hi all,  the Voiceitt indigogo campaign launched. I really think this can make an impact on the quality of life for SMA and also for other family members and friends. Please join the effort and forward this to who might be…"
Aug 10
Lisa Oltmans replied to wen's discussion Wheelchair head mount for type 1, 5 yr old
"You don't have to use the forehead strap but get it in case you ever need it.  Our Dad = wild driver!!! "
Aug 9
Lauren perlman is now a member of SMAspace
Aug 9
wen replied to wen's discussion Wheelchair head mount for type 1, 5 yr old
"Thanks Lisa."
Aug 9
wen liked shahar(Lior's dad,2.5 yr Girl)'s discussion VoiceIt - translating non comprehensible speech
Aug 9
Julio Carretero is now a member of SMAspace
Aug 6
Suzanne replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"Who pays for experimental drug when using Right to Try laws?"
Aug 5
tj bennett replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"interesting read.... When unapproved drugs are the only hope A movement has begun in several states to address the issue of access to experimental medicines. Called Right to Try, laws have been passed in Colorado, Missouri and Louisiana, and are…"
Aug 5
Rashad Bakker left a comment for Kristen Dougan
"Thanks!"
Aug 2
Kristen Dougan left a comment for Rashad Bakker
"My spinal fusion went good. I went to Children's in Oklahoma City. My dr is Dr. Puffinbarger. The surgery is pretty scary. The entire surgery lasts about 7 hours on me. The only problem I had was when I was in icu they wouldn't keep me…"
Aug 1
Rashad Bakker left a comment for Kristen Dougan
"Hi Kristen,my son rashad is 14 years old and he will be 15 on feb.he has also very bad Scoliosis,he is type sma 1.i like to know how was your surgery went and where?we like to do it but we always very scare.we live in new york city,i don't find…"
Aug 1
tj bennett replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"here it is...reposted: Researchers flex new muscle in SMA drug development http://decodingscience.missouri.edu/2014/07/researchers-flex-new-muscle-in-sma-drug-development/"
Jul 31
Kristen Dougan replied to Kristen Dougan's discussion Mini one feeding tube leaking excessively
"Thanks Lisa. That has some things we haven't tried."
Jul 30
Lisa Oltmans replied to Kristen Dougan's discussion Mini one feeding tube leaking excessively
"Hi Kristen - I went to the oley.org webpage to see if there were tips and they have a power point and an article that contain lot of info.  http://www.oley.org/lifeline/Tips_for_Dealing_with_Skin_and_Stoma_Issues.html   Hope they have…"
Jul 30
Courtney Ceccacci Roeckel is now a member of SMAspace
Jul 29

Forum

SMA and CBD

Started by Cynthia Cummings in Other yesterday. 0 Replies

VoiceIt - translating non comprehensible speech

Started by shahar(Lior's dad,2.5 yr Girl) in Technology. Last reply by Shelley Byrd Aug 14. 4 Replies

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

Top Content 

Members

Photos

Loading…
  • Add Photos
  • View All

Videos

  • Add Videos
  • View All

Badge

Loading…

Where are we?

Locations of visitors to this page

© 2014   Created by Nate Lee.

Badges  |  Report an Issue  |  Terms of Service