Latest Activity

tj bennett posted a status
"new hope for SMA.…"
Aug 17
tj bennett posted a status
"EAPSMA1https://www.facebook.com/theFASTmovement/photos/a.1502369826749829.1073741829.1501908410129304/1667365380250272/?type=3&theater"
Aug 13
tj bennett posted a status
Aug 11
tj bennett posted a status
"Read...Heart of Bureaucratic Darkness https://www.facebook.com/gm604forals/posts/1810923665795640"
Aug 11
tj bennett posted a status
"Duchenne advocates’ wait for an FDA decision nears the six-month mark http://tinyurl.com/jfulzcx"
Aug 5
tj bennett posted a status
"Now let's see how long it takes them to start helping everyone."
Aug 1
tj bennett posted a status
"$IONS SMA infant drug stopped early for efficacy!!https://twitter.com/RNAiAnalyst/status/760080607397412864"
Aug 1
Jeffery Hoffman is now a member of SMAspace
Jul 31
tj bennett posted a status
"Promising New Drugfrom LorsonLab Could Help TreatSMA.…"
Jul 25
Lisa Oltmans left a comment for Zia Joia
"Welcome Zia."
Jul 21
Lisa Oltmans left a comment for Lien
"Hello Lien. "
Jul 21
Lisa Oltmans left a comment for Bhavin Bijlani
"So sorry for your loss. "
Jul 21
Lisa Oltmans left a comment for erin bonner
"Welcome Erin. "
Jul 21
Lisa Oltmans left a comment for Chaia Miller
"Welcome Chaia. "
Jul 21
tj bennett posted a status
"AVXS Receives Breakthrough Therapy Designation for AVXS-101…"
Jul 21
Profile IconLien, Chaia Miller, Zia Joia and 2 more joined SMAspace
Jul 15
tj bennett posted a status
"Boys, Not Statistics A drug for muscular dystrophy works better than we reportedhttp://www.wsj.com/articles/boys-not-statistics-1467934040"
Jul 9
Jennifer is now a member of SMAspace
Jul 7
tj bennett posted a status
"Where’s the Drug, FDA?The agency keeps delaying a therapy for muscular dystrophy. http://www.wsj.com/articles/wheres-the-drug-fda-1467413266"
Jul 5
tj bennett posted a status
Jun 18

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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