Latest Activity

raj shekar reddy left a comment for Santosh Reddy
"hi santosh sad to hear about u. i am raj shekar reddy staying in bangalore  my son has sma 3. can i know more about u. if u don't mind please call me 09845390074 thanks"
raj shekar reddy left a comment for Tersia van Wyk
"hi tersia, sorry to hear about u. and thanx for your advise my son is sma type 3 onset at 2.5 yrs now he is 10yrsstill we have not given any kind of support to him. as u advises not to give the wheelchair. does respriratery problem comes in type 3.…"
Edda Arnaldsdottir posted a discussion

Looking for families in similar situation

Hi everyone, I am new here and so glad I found this forum!My husband has SMA type 3 and we have recently had a baby. We are very interested in finding other families in similar situation who can offer some advice and share their experiences with having a family where one (or both) parents are dealing with this disease. See More
Oct 4
Edda Arnaldsdottir is now a member of SMAspace
Oct 3
Tersia van Wyk left a comment for raj shekar reddy
"I am sorry to hear. You can try fresh avocado and also sardines in olive oil. I found that gives me a lot of strength. I take it in the evening and then I have great power the next day. Creatine x4 capsules with lots of water and 2mg Salbutamol…"
Oct 2
raj shekar reddy left a comment for Tersia van Wyk
"hi tersia. my son has sma 3. he is 10years old, but he can walk he gets tired soon"
Oct 2
raj shekar reddy left a comment for rashmi
"hi rashmi. i am raj shekar from bangalore my son has type3 and he is 10 years old."
Oct 2
raj shekar reddy left a comment for Kristina
"hi kristina  i am raj shekar reddy from india. my son was diagnosed type 3 sma. how is u r son doing how old he is. thanks Raj"
Oct 2
tj bennett posted a status
"No (AAP) for ALS! | September 29, 2015 CALL TO ACTION:"
Sep 30
raj shekar reddy is now a member of SMAspace
Sep 29
Karen is now a member of SMAspace
Sep 27
tj bennett posted a status
"@US_FDA $ISIS SMNrx, placebo is unconscionable, immoral. No toxicities"
Sep 25
Bonnie MacBean left a comment for Lisa Oltmans
"Thank you Lisa!"
Sep 24
tj bennett posted a status
"ALS patients get access to experimental drug — but not in U.S."
Sep 23
tj bennett posted a status
"Time to write Congress! Please tell members of Congress we need help."
Sep 14
Suvi Karhu liked shahar(Lior's dad,2.5 yr Girl)'s discussion VoiceIt - translating non comprehensible speech
Sep 9
wen added a discussion to the group Vacations
Sep 5
Jammie Davis is now a member of SMAspace
Sep 2
Brandy D Shifflett (Emma's Mom) liked Len Aizenstein's discussion Offer: Van with wheelchair lift (extremely low miles plus built in video system)
Sep 2
Profile IconNici and debbie joined SMAspace
Aug 31

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.





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