Latest Activity

tj bennett posted a status
"Should patients pay their way into clinical trials?http://tinyurl.com/nvvqhlc"
Thursday
tj bennett posted a status
"Scientists coaxed the development of muscle from adult stem cell. http://www.nanotech-now.com/news.cgi?story_id=51951"
Jul 23
wen posted a status
"Angel Arm Exoskeleton - 3D print Read: http://tinyurl.com/qgyeowg Video:…"
Jul 18
tj bennett posted a status
"Sick kids, desperate parents,battle for experimental drugs The complex world of compassionate use drugs http://tinyurl.com/ntpmoy5"
Jul 16
tj bennett posted a status
Jul 15
tj bennett posted a status
"clinical trial to treat motor neuron disease. http://tinyurl.com/q4f3uzy"
Jul 15
tj bennett posted a status
"Fresh hope for motor neurone disease sufferers http://tinyurl.com/qjdrsxg"
Jul 12
tj bennett posted a status
"I Can't Wait Campaign advocating treatments NOW ALS/MND http://tinyurl.com/plrzgd9"
Jul 12
tj bennett posted a status
"EVERYONE deserves this chance. We were completely blessed to get into the SMNrx trial.we are beyond thankful. http://tinyurl.com/qewlaus"
Jul 4
Lisa Oltmans left a comment for Louis Ke
"Welcome to SMA Space, Louis. "
Jun 23
Lisa Oltmans left a comment for Jelani
"Welcome Jelani to SMA Space. "
Jun 23
Jelani is now a member of SMAspace
Jun 17
tj bennett posted a status
"Pioneering gene therapy may save babies’ lives http://tinyurl.com/p7h4gts"
Jun 17
Louis Ke is now a member of SMAspace
Jun 13
tj bennett posted a status
"Infants with rare cases of SMA get strongerhttp://tinyurl.com/o6w5bgw"
Jun 11
Lisa Oltmans posted a photo
Jun 5
tj bennett posted a status
"ask the FDA to "Be reasonable" and use accelerated approval for a whole class of new medicines http://tinyurl.com/l6w42yc"
May 23
Profile IconLisa Oltmans and Angileigh Hartman joined SMAspace
May 22
tj bennett posted a status
"UCLA professors launch campaign for son’s muscular dystrophy http://tinyurl.com/me4m97x"
May 21
tj bennett posted a status
"SMA mom: Everyone knows it ( $ISIS) works https://twitter.com/ArtSlott/status/600702148154757121"
May 19

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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