Latest Activity

Sam Bonsett replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"Hi Annette, I'm not sure why it suddenly went private but it was about 2 sisters 1 was type 2 and the other was type 3. They looked early teens. I will do some more research and post the facility and Doctors name."
yesterday
michelle worrellia replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"ha ha Vincent you supported stem cell and Hans - what you raised like over 3ooK bucks right? "
yesterday
Annette Reed replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"I think now its the Isis SMNRx! There was a video posted a few days ago about a girl with type 3 out of Kansas MO who is in the ISIS clinical trial: New Drug for SMA shows Profound effects in clinical trial. It has now gone private!"
yesterday
Annette Reed replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"Hi Sam! Can you give more details about this video? The link takes me to a private video."
yesterday
Sam Bonsett replied to Jen (Boro) Peters's discussion HOW CLOSE ARE WE TO A TREATMENT OR CURE???/
"Does anyone know what trial this is?  I'm with Brad 5 more years... https://m.youtube.com/watch?v=n3r5pPfE0QQ&feature=youtu.be "
yesterday
Patricia Rudd posted photos
Friday
Patricia Rudd commented on Patricia Rudd's photo
Thumbnail

cosmo jump rope 1st grade

"Cosmo loved playing jump rope with his friends in first grade.  Davis Made doesn't make this chair any longer.  I am working on one that will be better and less expensive than this one.  Look for us at the FSMA Conference next…"
Friday
Lisa Oltmans left a comment for Dianne Goedtel
"Welcome to SMA Space Dianne"
Jul 16
Dianne Goedtel is now a member of SMAspace
Jul 15
Lisa Oltmans replied to Laura Bairett's discussion On to College
"Laura, What a wonderful accomplishment.  I'd check with your high school to see if they have a staff member who helps students with scholarships to college.  Another resource is the public library.  They will have reference…"
Jul 15
Lisa Oltmans posted a blog post

Hope is never False

Hope is the welling up of possibilities that exist in every direction from the point where you find yourself right now.  There is either hope or hopelessness. There is no such thing as false hope. If you find yourself in what seems to be a hopeless place, take two sheets of paper.  On one, write down all bad things that can happen, and read it aloud. Tear that paper into ten thousand tiny pieces and burn it.  Never speak of the bad things again and do not let others speak of them in your…See More
Jul 15
Laura Bairett posted a discussion

On to College

Hello all,I am going into my senior year of high school, and as the subject line suggests, have no intention of stopping there. I'm sure all of you are aware of the difficulties and expenses that are accessory to having SMA (Type II, for me). That being said, I'm going to need a fair amount of money to move out and strike off on my own in the grand world of college. I'm seeking scholarships. Does anyone know where I can find SMA/disability/advocacy related scholarships? To give you a slightly…See More
Jul 10
Misty dobson liked Lizzys Nina/Jeanna's photo
Jun 23
Teresa is now a member of SMAspace
Jun 19
Samantha Baldwin replied to Susan Haas Bowes's discussion Weight Loss in the group SMA Type III
"Hi Susan, I am currently on a mission do have a better lifestyle by eating delicious healthy foods - and a small progress has been made already, in the last 6ish months I have lost approx 2 kilos and I wasn't fully committed to it. I would…"
Jun 17
Tersia van Wyk shared a profile on Facebook
Jun 16
Tersia van Wyk is now a member of SMAspace
Jun 15
Lizzys Nina/Jeanna posted photos
Jun 14
Profile IconDominika Murphy and Scot Proksha joined SMAspace
Jun 13
Patrice and Ian Fletcher posted a status
"Happy Birthday Sweet Angel, you are forever in our hearts."
Jun 10

Forum

HOW CLOSE ARE WE TO A TREATMENT OR CURE???/

Started by Jen (Boro) Peters in Other. Last reply by Sam Bonsett yesterday. 89 Replies

On to College

Started by Laura Bairett in Education. Last reply by Lisa Oltmans Jul 15. 1 Reply

Mobile/ceiling lift and transfer help

Started by Katharina Dinter in Equipment. Last reply by Ritu (Kavya's mom) Jun 8. 1 Reply

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

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