I recommend Dr. Richard Finkel Division Chief of Pediatric Neurology at Nemours Childrens Hospital in Orlando, Fl. He is conducting a clinical trial of a drug to treat SMA, my daughter is in the trial and we have been pleased…"
"Im 24 and I just got diagnosed last year. I have been having a hard time telling people because everyone assumes Im normal and when I was getting diagnosed last year one of the people I thought was one of my closest friends told me there was too…"
"Hi Kjersten, you have found the right place! My grandson, Charleston, is 5 YEARS old, Type 1. This site does have help, but you really need to go on Facebook & join some of the groups there. Do a search for SMA & there will be a bunch. Best…"
The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA. Please visit this link to see the latest list of resources available to the SMA community.